I suck

Okay, so I totally suck at blogging! I blame it on my profession...it's like the landscaper that doesn't want to mow his own yard. I write all day, yet can't seem to find the time to keep this current. So, sorry this is long overdue...
Today was my birthday and I swear God sent me a little happy birthday message...We had quite the little scare today. Sam is STILL on ACTH therapy and is still immunosuppressed. One of the precautions we have to take is to test his urine every other day for a few things. Well, this morning, his leukocytes and nitrates were high, which indicates a urinary tract infection. Not a big deal in most kids, but for Sam, could be very serious because his body can't fight infection right now. Our pediatrician told us to go to the ER, which we did. They had to catheter him (ouch) but the urine came back clean and we were sent home. We're still not completely out of the woods until the culture comes back, but so far, things look good. Sam really does have a way of showing us what is important in life. We had such a busy day "planned" but ended up spending it in the ER. And honestly, it doesn't matter where we are, as long as we are together as a family and okay, I am grateful!!!
As far as the seizures are concerned, we think Sam is doing pretty well. He has a 4 hour EEG tomorrow, so we will know more after that. We are having the hardest time getting off this ACTH because whenever we step down on the dose, the spasms come back. But it is our goal to be done with it by the end of July!
We also have a swallow test Tuesday, and feeding clinic Wednesday (big week at the children's hospital). We are hoping and praying that Sam can start eating some stuff by mouth. Even if he needs to hold on the tube for awhile, it would be so nice to give him some stuff to eat. He's constantly grabbing at our cups and plates and it breaks my heart!
So, please pray for us this week that Sammy stays seizure free and does well with his swallow/feeding appointments. And please hold your children and your loved ones extra tight tonight. And tell them how much you love them. I know I will.
Love,
Laurie